Publications & Audits


How can you access Adult SMA REACH data?

1. Prepare your submission

  • Fill out our Data Request Form.
  • Attach a detailed proposal outlining your study objectives, the specific data needed, and its intended use.

 

2. Submit request

 

3. Steering Committee review

  • Your application will be reviewed by our committee.
  • You’ll receive feedback or approval and may be asked for clarifications.

4. Data access granted

  • Fill out our Data Request Form.
  • Attach a detailed proposal outlining your study objectives, the specific data needed, and its intended use.

5.Timeline

  • Typical turnaround is 2–4 months from submission to data release.


Why?

 
Adult SMA REACH UK enables academic research and clinical audits, our adult database supports a wide range of studies.
Whether you’re from an academic institution, NHS, or industry. All requests undergo rigorous steering committee scrutiny to ensure data security and appropriate use.


Collaborations

We welcome opportunities to work with national or international partners from academia, healthcare, and commercial sectors.
 If your project involves collaboration, just mention this in your proposal.

Interested?

Get in touch – email the team: nuth.adultsmareach@nhs.net

Adult SMA REACH is funded by:

biogen
Roche logo

Contact us: adultsmareach@nhs.net

JWMDRC, NHS & Newcastle University logos